It started on this day, five years ago.
Just a few days before that, I wrote this post. When you read it now and see how I was feeling -- the exhaustion, the edema, the return of constant vomiting -- it's clear that the disease had already begun to emerge and started trying to kill all three of us.
For some reason, I didn't blog between that post and our trip to the doctor for our routine ultrasound. I don't know why, now. Back then I blogged nearly every day. I must have felt more sick than I realized. But I do know, that at exactly this time as I am writing this five years ago, Sarah, Charlie and I -- along with my sons, Nicholas and Zachary (safe, I thought, inside me) -- were sitting in the lobby at Pennsylvania Hospital in center city Philadelphia waiting for my routine growth scan.
We were laughing. We were laughing about names, we were laughing about life.
Then we were in the room, and the ultrasound technician was laughing too, until she got quiet. She switched us from one room to the other, from one machine to another. She stayed quiet. Sarah and Charlie knew something was up; but I, deliriously ill (I now suspect), kept trying to laugh. I was in immediate denial mode.
The doctor came in. He told us one of the boys had died, probably in the last week or so. He tried to hand me a box of kleenex, which annoyed me, because I DO NOT CRY about that sort of thing, I am stoic, I am all business, I NEED TO KNOW THE NEXT STEP.
Immediately at that point a series of random events began that ended up saving my life.
First domino falls: the perinatlogist (the one that tried to give me the tissues) was flummoxed by me, so he decided to call my obstetrician and tell him the news while we waited. Then, my OB, the awesome Dr. Mama (yes that's his real name), told him to please send me to his office so he could talk to me (the perinatologist had previously planned to just send me home).
Second domino: once I got to the office, even though I was only supposed to talk to the doctor and not get an exam, the nurses didn't realize this and had me do the usual peeing in a cup and getting weighed and stuff. The weight revealed a 22 lb gain in less than ten days; a lot, even for a fattie like me. The urine? Showed protein off the charts. My blood pressure? Soaringly high. The nurse did it three times, blinking harder and harder each time.
Third domino: Dr. Mama didn't even glance at my chart when he came in. He came to me, held both of my hands, looked me in the eye and told me how sorry he was. For the first time, my veneer cracked a bit. He spoke with us at length about the nature of twin pregnancies, etc, finally looking down at my chart just cursorily, then doing a literal double take. He slowly sat down. He said, "You need to go to the hospital, the labor and delivery ward, right now. Your protein is high, your blood pressure is high, your weight had jumped up. I think you might have preeclampsia or HELLP syndrome." I asked if we could get lunch first (!!!). He said NO.
With these three minor points, I landed in the hospital just exactly at the point that my disease really got entrenched and probably saved me from far worse damage. If I had gone home that night, if I had not been in a hospital on Magnesium Sulfate... well, I just don't know, do I? If I'd been un-medicated when my blood pressure hit its highest spike -- somewhere around 210 over 165 -- I don't know what would have happened. Would I have seized? Stroked out? Simply died?
I don't know.
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Four years ago on the anniversary, I wrote this. I can see now that I was detached from my grief, keeping it away from me while I celebrated the joy of being pregnant once again. It's highly unlikely that it was merely a coincidence that I was finally "ready" to do a frozen embryo transfer the same month I lost the boys, and not before. But I did. And it protected me.
Three years ago I wrote this. Yep, I didn't acknowledge the anniversary at all. Until a day or two later when I wrote this. Even then I'm still clinical and detached from the grief, I do remember having tremendous guilt that I hadn't remembered the boys on that day. But I had an amazing four-month old baby! And I was working full time! I didn't have time for the grief.
Two years ago, I wrote this. Now it's really surfacing. Now the grief is being acknowledged. I guess there was enough time and distance, and Tori was clearly REALLY HERE AND ALIVE, that I could feel it. Plus I was no longer working, and I was starting down the road of fully, truly living as myself and not hiding who I am with masks.
Last year, though. Last year was the year. Between the similarities in the outside world -- once again, the nation was undergoing a presidential election, one I felt incredibly passionate about, and emotions were running high all around -- well, last year the grief was there. It was real. It was powerful. I had trouble functioning, and eventually I came to believe that I have some Post Traumatic Stress Disorder around pregnancy and birth (shocking, right?), I sought help, and I got some medication (which, you know, didn't work out so awesome, but is a work in progress). I wrote this, and then, just like four years earlier, I was silent until the actual anniversary (at which point I didn't write about it, but I remember, I was feeling it).
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This year feels different. Part of it, I suspect, is that it's now been five years. Now I have an energetic and adorable kid. No my life is filled with simple pleasures and joys, and I know more about the part of me that is sad than I ever did before. Acknowledging and accepting the PTSD -- not just about losing the boys, but about the trauma of Tori's birth (thanks, placental abruption) -- has helped me tremendously know, sense, feel, and accept my own feelings. I've also shaken off so much crap in the last year; really embraced myself as a resident of the village of social media, become more confident and directed professionally, and feeling more and more like I'm living in my own skin. I no longer feel much in the way of acute grief today; I more feel a need to acknowledge and accept the loss of the boys, but I know now that the grief is ALWAYS there; it is not stronger today, particularly. It's always there, a part of me, just like my blue eyes.
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The fourth domino that saved my life, of course, is that I happened to have as an obstetrician a doctor that was trained and comfortable in performing an intact dilation and extraction procedure, preventing me from being forced to either go through labor and delivery (which most likely would have caused me to have a stroke, and suffer likely permanent brain damage) or through a c-section (more likely, and would have cost me my uterus; it would have been the only way to keep me from bleeding to death during the surgery because of my extremely high blood pressure). This procedure, if you don't remember, is often called a partial birth abortion. I'm not much interested in discussing the procedure today, and I am certainly not at all interested in anyone discussing whether or not these facts are true, and if the procedure was "really warranted" in my particular case because it WAS. End of story. I'm done defending myself or explaining this to anyone that doesn't understand or believe me.
I am terribly, terribly saddened that my sons did not survive. But yesterday Tori and I were hiking and I showed her how the earth on the trail was actually clay and we made a tiny clay heart together and you know what? I am so fucking happy I survived, and that I have my uterus, and that Tori was born.
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In 2005, on Nicholas and Zachary's due date, I wrote the post below. At the time, I was being clever and arty to avoid feeling any grief. But now, after all this time, I think this post is perfect to celebrate the brief time the boys were here, and say goodbye to them once again. I believe it will spend my life saying good-bye to them. I've edited the post a bit to work today. The words come from the libretto in the final scene and duet in the opera Aida by Verdi.
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“Thou who the heavens alone for love created.”
.
Nicholas and Zachary were lost forever five years ago tomorrow.
Of course, one of them had died before then, but I didn't know until five years ago today. And five years ago tomorrow, six doctors surrounded my hospital bed and told me it was over, they had to terminate the pregnancy or I would die along with my sons.
.
"In all thy beauty blooming…"
.
After we found out we were having boys, I was terrified. I’d
always wanted a girl, and I didn’t know the first thing about raising boys. I
struggled mightily with this; I felt (and was told I was indeed) ungrateful. But I was
so scared. Finally, finally, in the last month of my pregnancy, I began to
really look forward to having sons. We spent hours, Charlie and I, debating
names. Charlie was given a book about parenting, and was devouring it every
night. We were excited. We were blessed. We were ready.
.
"My heart forboded this dreadful sentence…"
.
Throughout the pregnancy I waited for the other shoe to
drop. I couldn’t imagine it would be ok, that we would sail into happiness so
easily. When they told us that one twin had died, I found myself letting out a
breath that I’d been holding for five and a half months. That’s it, I thought,
at last, the bad thing, it’s over now, it’s happened. Finally. I can relax.
.
"Brief dream of joy condemned to end…"
.
The next morning, when they told us our other son had to die
so I could live, was… impossible. Hard. Agonizing. Devastating. Crushing.
Misery. Pain. As someone said to me at the time, there aren’t words yet
invented to describe a grief so huge, so all encompassing. It was the worst moment of my life.
.
"Unshadowed, there eternally shall glow…"
.
I do believe in a heaven of sorts, and I feel sure that my
sons have moved on. My favorite religious interpretation about pregnancy loss and still birth is Buddhist. The
Buddhists say miscarried and still-born babies have already learned all the
life lessons they needed to in past lives, and now they only have to touch on
this earth long enough to be wanted and loved before they get to go to Nirvana.
I love this, and it fits my heart well. It feels like truth.
.
"To us now opens, opens the sky, peace everlasting…"
.
Charlie and I are moving on. Grief has become comfortable,
just a part of us, like our blue eyes. We will miss Zachary and Nicholas every
day of our lives; more so, we know, now that Tori is part of our life.
.
"Farewell thou vale of sorrow…"
.
It’s time to live, look forward, and find, once again, that lost
Hope.
Goodbye, my sons. I love you. I miss you. You are in my
heart, now and forever.
.
"Seest thou, where death in angels guise,
In heavenly radiance beaming
Would waft us to eternal joys
On golden wings above
See, heaven’s gates are open wide
Where tears are never streaming
Where only joy and bliss abide
And never fading love."